There are so many types of foods I never ventured to try before being diagnosed with celiac. Well, one of them was sushi, and when I say sushi I mean vegetable rolls. I’m pretty boring but that’s what it takes to satisfy my sushi craving.
I tried my first bite of sushi with college friends at Toku in the Americana. From the first moment I tried sushi I was constantly craving it. As delicious as the sushi is at Toku, the restaurant is too fancy for a quick, casual meal. That’s where Tenjin comes in. Located in the town of Syosset they accommodate GF and the rolls are reasonably priced. You can check the menu out here.
When you order be sure to ask for Steve. Steve’s the manager but I always like him to take my order as he knows how sensitive the diet is. If you’re boring like me then you should definitely ask for Steve as he’s fast to create some delicious GF sauce concoction.
Monday night I had the pleasure of speaking at the R.O.C.K (Raising Our Celiac Kids) meeting. These meetings take place at The Plainview Old-Bethpage Library in Nassau County, New York. The room, usually filled with delicious gluten free goodies for everyone to taste, provides an open forum for mothers and fathers to ask questions about Celiac, share new products, new restaurants and most importantly creates a support system. Monday night we were introduced Tanya’s Gluten Free Pretzel bites and let me just tell you they were AMAZING.
Randi Abertelli, the Nassau County leader asked me to speak with the group about my experiences with Celiac Disese while attending college. (Go Penn State!) I was happy to speak to the parents about the changes I have seen from 2008 until now at my own university. Penn State food services is nothing short of amazing. They completely went above and beyond their call of duty to ensure I was well fed which allowed me to concentrate on my schoolwork rather than concentrate on my dietary needs. Please feel free to check out this great article written by Michele Marchetti and this one written by Katie Ross for Gluten Free Delights Magazine . Hopefully by reading this you will have a better understanding of the positive impact Penn State Food Services had during my four years away at college.
For those of you living in the Long Island area be sure to check out http://www.rockli.com/. This is a GREAT place for you to meet other parents who have children going through the same thing! Most of all these children are so lucky to have parents that are caring and changing the meaning of Celiac for future generations.
I frequented my favorite pizza places in the Jericho area, on Long Island without a care in the world. My order was always the same, “Two slices please, cut up in small pieces.” Then I was diagnosed with Celiac Disease and this food that I enjoyed so much with my friends on a Saturday or at a birthday party was quickly eliminated from my diet.
It was not until recently that two pizzerias on Long Island, Fanatico and Café Dolce Vita, both added gluten free pizza to their menus. What’s nice about these places is that they are both very casual and are are great to grab a quick slice with your friends/children or sit down for a nice meal. The manager at Café Dolce Vita was a pleasure to deal with. I spoke with him and although they cook the gluten free pizza in an oven used for all pizza, they take the precaution of cooking gluten free in a separate pan to ensure there is no cross contamination.
Again, make sure to always ask questions as you having nothing to lose and everything to gain. Restaurants that have gluten free items on their resume was your feedback and want to make sure that you are enjoying your meal.
So, I’m happy to tell you…once upon a time is no longer once upon a time…because I’m able to enjoy pizza again, and so are you! Let me know if you try it and what you think!
Well, I’m definitely writing this post with sore legs and a full stomach! Yesterday Craig Pinto and The Kicking 4 Celiac Foundation teamed up with The Center for Celiac Research at the University of Maryland. The “Making Tracks For Celiacs” was the first Celiac awareness 5k held on Long Island! It’s events like this that make me feel so lucky to be involved with such a great foundation. With about 200 walkers/runners the first year was a success to say the least. I just wanted to share some new information…
I spent some time speaking with Louisa Rasmussen, a registered dietitian. She herself understands what it’s like to be living a GF lifestyle. Her concept GFreely is really great. For 25 dollars a month you will receive a package with some delicious foods. If you’re looking to eat something healthy and delicious, I highly recommend looking into this. I tried the lentil salad and it was out of this world! You can visit their http://gfreely.com/ for more information.
Next up, “Alyssa’s Gluten Free.” Alyssa Pinto also recently diagnosed with Celiac has always been a foodie. She has taken the time and effort to find the best recipes to leave you wanting more. Yesterday I had her mini-cupcakes and kept going back for more. Be sure to “like” her facebook page, because you are most definitely going to want to order some delicious treats!
Also, for those of you in the New York area, I am excited to be speaking at the R.O.C.K (Raising Our Celiac Kids) Meeting regarding attending college living a gluten free lifestyle. The meeting on June 19th will start at 7:30 PM at Plainview – Old Bethpage Library. Hope to see you there! I’m so excited to speak about how Penn State Food Services has positively impacted my life! Be sure to check out their website as well as they have great information.
Six letters formulate a single word that has been affecting lives across the nation. This word is GLUTEN. While many are familiar with the word, people do not know what this actually means. Gluten is a protein found in wheat, rye, barely, and certain oats. If you are reading this and do not have a gluten intolerance or Celiac Disease it’s still important to have a clear understanding of it, seeing as how more people have been diagnosed than ever before. People like myself, living with Celiac Disease do not have the antibodies to break down and process food the same way a person without Celiac Disease can. The villi of a person with Celiac Disease is flattened whereas anyone living a normal lifestyle has villi standing up that absorb the nutrients.
Now that you have a better understanding, this is how my story begins. I graduated from Jericho high school in 2008 and after a few years of feeling sick, bloated and several trips to the ER with kidney stones my parents and I recognized that there was a problem that needed to be fixed – I was not living my life the way a 17 year old should. When I was diagnosed with Celiac Disease a week before starting college at Penn State University I was nervous and overwhelmed. At that time, even though it was just 4 years ago, very few people were familiar with this disease and the implications it can have on your life.
Upon my diagnosis, which was first done with a simple blood test and later verified through an endoscopy, I turned to WebMD to answer some questions (not a good move). Not only was I highly uneducated, but I didn’t know where to turn for information. I was about encounter the challenges most graduating high school seniors face when making the transition from high school to college, and now I had to add this ‘disease’ to my list. Looking back now, at the age of 21 and post graduation, I can confidently say that I have overcome many hurdles and I want to share my experiences to help make someone’s (maybe your) life a little less stressful. I am putting the pen to the paper so to speak to tell my tale of a girl who is YOUNG WILD AND GLUTEN FREE! I know what it’s like to go out on a date and quickly hit a boys hand before he puts his gluten contaminated fork in your dish. I know what it’s like to have everyone at a party ask, “Oh my god, you can’t drink beer, how do you survive?” But most importantly, I know what it’s like to take something that you may think of being negative and turn it into a positive.
Through this blog I will share with you:
– Restaurants in the New York Area
– Travel information (what to pack/where to eat)
– My involvement with Kicking 4 Celiac Foundation(http://www.kicking4celiac.org/)