Tag Archives: Celiac Disease

Get your running/walking sneakers on!

31 Mar
     As most of you know I was diagnosed with Celiac Disease back in 2008. Celiac Disease is an autoimmune disease cause by the intolerance to gluten.  Gluten is primarily found in wheat, barley, rye and certain oats. Since day 1 of my  diagnosis, I have done my best to adjust to a healthier lifestyle.  Beyond that, I got involved with Kicking 4 Celiac, an amazing non-profit.  My sister has joined the board with me as well.  Our foundation dedicates itself to helping raise awareness and providing a resource for children of all ages (and their families) who have been diagnosed with Celiac. You can check out the foundation website to learn more here: www.kicking4celiac.org.
     Last year, was the first annual Kicking 4 Celiac Foundation 5K Run/Walk in which I took part with my family and a few friends.  This year, I wanted to reach out to you to take part in the walk/run. The event will take place on Saturday, June 8, 2013 in Oyster Bay. My family has created a team “Young Wild and GFree,” which is named after this blog. We would love for you to come walk with us!  All money raised goes to The Kicking 4 Celiac Foundation’s scholarship fund.
     While the Gluten Free community has made tremendous progress over the past few years, we need to keep spreading the word to raise awareness!!
FYI:  If you’re not the running type, don’t fear – there’s a large group of walkers.  For those commuting in from NYC you can take the train to Oyster Bay which will let you off RIGHT in the parking lot where the 5K begins.
     Here is a link to the Young Wild & GFree Page:  Kicking 4 Celiac: Team Young Wild & GFree where you can join our team or make a donation.



Long Island’s First 5K For Celiac Awareness

11 Jun

Well, I’m definitely writing this post with sore legs and a full stomach!  Yesterday Craig Pinto and The Kicking 4 Celiac Foundation teamed up with The Center for Celiac Research at the University of Maryland.  The “Making Tracks For Celiacs” was the first Celiac awareness 5k held on Long Island!  It’s events like this that make me feel so lucky to be involved with such a great foundation.  With about 200 walkers/runners the first year was a success to say the least.  I just wanted to share some new information…

I spent some time speaking with Louisa Rasmussen, a registered dietitian.  She herself understands what it’s like to be living a GF lifestyle.  Her concept GFreely is really great.  For 25 dollars a month you will receive a package with some delicious foods.  If you’re looking to eat something healthy and delicious, I highly recommend looking into this.  I tried the lentil salad and it was out of this world!  You can visit their http://gfreely.com/ for more information.

Next up, “Alyssa’s Gluten Free.”  Alyssa Pinto also recently diagnosed with Celiac has always been a foodie.  She has taken the time and effort to find the best recipes to leave you wanting more.  Yesterday I had her mini-cupcakes and kept going back for more.  Be sure to “like” her facebook page, because you are most definitely going to want to order some delicious treats!

Also, for those of you in the New York area, I am excited to be speaking at the R.O.C.K (Raising Our Celiac Kids) Meeting regarding attending college living a gluten free lifestyle.  The meeting on June 19th will start at 7:30 PM at Plainview – Old Bethpage Library.  Hope to see you there!  I’m so excited to speak about how Penn State Food Services has positively impacted my life!  Be sure to check out their website as well as they have great information.

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Hello World!

18 May

Six letters formulate a single word that has been affecting lives across the nation. This word is GLUTEN.  While many are familiar with the word, people do not know what this actually means. Gluten is a protein found in wheat, rye, barely, and certain oats.  If you are reading this and do not have a gluten intolerance or Celiac Disease it’s still important to have a clear understanding of it, seeing as how more people have been diagnosed than ever before.  People like myself, living with Celiac Disease do not have the antibodies to break down and process food the same way a person without Celiac Disease can.  The villi of a person with Celiac Disease is flattened whereas anyone living a normal lifestyle has villi standing up that absorb the nutrients.

Now that you have a better understanding, this is how my story begins.  I graduated from Jericho high school in 2008 and after a few years of feeling sick, bloated and several trips to the ER with kidney stones my parents and I recognized that there was a problem that needed to be fixed – I was not living my life the way a 17 year old should.  When I was diagnosed with Celiac Disease a week before starting college at Penn State University I was nervous and overwhelmed.  At that time, even though it was just 4 years ago, very few people were familiar with this disease and the implications it can have on your life.

Upon my diagnosis, which was first done with a simple blood test and later verified through an endoscopy, I turned to WebMD to answer some questions (not a good move). Not only was I highly uneducated, but I didn’t know where to turn for information.  I was about encounter the challenges most graduating high school seniors face when making the transition from high school to college, and now I had to add this ‘disease’ to my list. Looking back now, at the age of 21 and post graduation, I can confidently say that I have overcome many hurdles and I want to share my experiences to help make someone’s (maybe your) life a little less stressful. I am putting the pen to the paper so to speak to tell my tale of a girl who is YOUNG WILD AND GLUTEN FREE! I know what it’s like to go out on a date and quickly hit a boys hand before he puts his gluten contaminated fork in your dish.  I know what it’s like to have everyone at a party ask, “Oh my god, you can’t drink beer, how do you survive?”  But most importantly, I know what it’s like to take something that you may think of being negative and turn it into a positive.

Through this blog I will share with you:

– Recipes

– Restaurants in the New York Area

– Travel information (what to pack/where to eat)

– My involvement with Kicking 4 Celiac Foundation(http://www.kicking4celiac.org/)

– Address any questions you may have …. and more!
This coming weekend I’ll be attending the buzzed about food festival in Brooklyn, Googa Mooga (http://googamooga.wpengine.com/)  While I didn’t want to miss out on a fun day music and sun, I also want to enjoy the food like all of my friends!  Just the thought of watching them indulge every morsel of delicious food made me cringe.  So I took action! 75 calls later to all the food vendors and  I now have a plan of attack as well as a few new foodie friends!  Stay tuned for my take on the festival and some of my top eats there!
Lets dig in,
Schnittuation 😉
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